Isaac is done with the scope part of his stay. I knew it wasn't the greatest news when they came out of surgery a little sooner than they told us it would be. The doctor wasn't able to scope past a very little part in his colon because the inflammation was so severe. She believes it to be chronic Crohn's but won't officially diagnose him until the biopsies come back tomorrow. There is another test they want to run that they can do until 10 tonight. They want to keep him until at least Thursday to see how he reacts to food. He will be given IV anti-inflammatory medication as soon as there is a diagnosis. Isaac is upset. Back in October we speculated it being Crohn's and we did a lot of research on it and he knows it isn't something he wants to have. Pray for the rest of our time here. Pray for Isaac to have peace and feel hopeful that his life can be normal.
The longer you are here the more hopeful or thankful you can be. I'm sitting across from a woman (she's on another computer). She came to the Cities to visit her aunt and while here her 9 month old baby boy got sick and now needs a heart transplant and they don't want to move him to Chicago where she lives because he's too sick. Then you meet the dad of a 10 month old whose not been home since January and the dad already buried a daughter at the age of 1 year and 7 months who died of the very thing his son has. Then you meet a 15 year old who hasn't left the hospital in three months because of the cancer she has. It is not an uplifting place. Thankfully Isaac can be mostly treated from home.
We continue to juice for him and are very thankful they let us be in charge of his food and even bring in our own. I bought him some real eggs for tomorrow. We are taking it easy with juice and broth today since he had biopsies taken. Pray for healing.
1 comment:
I'm sorry that it looks like Isaac has Chron's. I imagine it may be a relief just to know, though, even if the outcome isn't what you were hoping for. My former roommate was diagnosed with Chron's as a child. Eventually, I can put you in contact with her, if you are interested. She did struggle with flare-ups for years, but has been symptom free for years by following a restricted diet.
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