Update...

Hi, Isaac had an appointment today and his hemoglobin was up from the blood transfusion. We are going to transfuse him tomorrow at 2 p.m. and then check it weekly for about a month. It takes about a month for a blood transfusion to take complete effect, so we were told today. While we are planning on Mayo clinic we are waiting for his body to adjust to having a higher hemoglobin before we start the barrage of testing. We're still praying for complete healing!

I waver between highs and lows. I can get anxious and have found some good verses in James 1 that have helped give my attention to God's promises of those that go through trials. I constantly ask God "Why now?" "What is your plan? What is you have for us to learn or do or figure out?" "Please take this burden, Lord and heal my son so we can just have a normal life!" "Please, help me know what to do?" I really need to keep my focus on the important things. I've been snappy lately and I don't like to act that way when I'm stressed but it is so hard sometimes to see God's plan in all of this. I get so down and out about it some moments and other moments I'm completely in His hands, trusting in His perfect plan. I figure I should be a better person and then God would hear me or I must be doing something wrong yet and that's why Isaac isn't better. If I was more diligent in feeding him more nutritiously or if I was more in the word God would answer me the way I want. I know God doesn't work that way as my hubby tells me and my heart tells me. But, when I'm struggling I have these thoughts. I can usually find that calm at the end of the storm in prayer and persevering through the hard thoughts. I do find many things to praise the Lord for. Thanks for your thoughts and prayers. Isaac is doing quite well. He's doing well in school, got a 100% on his first math lesson and seems to enjoy school right now.