Kevin and I ran to town to pick up finishing things for birthdays and a shower curtain rod for our almost finished bathroom last night. I got out a few times at stores and noticed one of my brand new gloves the girls bought me missing. I felt awful because they picked them out for the feel of it and look and I love them. We drove back to the first store we went to and Voila! it was there right where I stepped out of the van. I had prayed the whole way that it would be there and what a nice surprise to find it, a little bit rumpled from being driven on but there just the same.
Isaac has shown a nice sign of improvement yesterday, only 1 bm all day. I pray it continues on this path and we see the blood gone soon. It's such a little amount now and not every time! I pray also for weight gain, growth in height, etc. With him being on so much prednisone we may not see the height growth for some time. He is slowly coming off it. We have a Dexa-scan on Wednesday to see just how do his bones look right now. He'll probably have one once a year to gauge growth. I guess it is a quick scan but we have to be there at 8:30 a.m.
courageous
Monday, December 28, 2009
Saturday, December 26, 2009
Soapbox again...
I know I've been on a soapbox of sorts with this health care bill. :( It passed 60-39 Christmas Eve Day. It was a sad day for Americans and most of them don't understand how sad it will be until they start paying for this. So many are misled into thinking they will be getting "free" health care now. Sorry, it doesn't work that way. We, of all people, understand the cost of doctor visits and hospitals and tests and medications. It has been a long 14 months of health care costs. If I thought my life would be easier with the passage of the bill I wouldn't have fought it so much, maybe. I'm still against government-run anything. They don't have a good track record.
Our Christmas Eve went well. We attended a candlelight service in the church I grew up in and my parents still attend. The girls played violin and sang with daughters of ladies I went to church with and sang with once upon a time. We had lasagna and opened gifts at my parents afterwards. My brother is a brat but I forgive him. I was originally hoping to buy a Wii computer game system for the kids for Christmas but opted not to buy them anything and he went and bought them one. I am not a computer person, I must say but the Wii is so interactive physically that I thought it would be a lot of fun on snowy days like today. They have been playing baseball, bowling and boxing today. It may work as a great incentive to get school done.
Four kids have birthdays in the next two weeks and then another in 5 weeks so I just decided to do birthday presents only since they would get gifts from others for Christmas. Well, we didn't even get a thing for their stockings. Yesterday morning Kevin and I had second thoughts because the kids couldn't wait until they woke up to see what was in their stockings :( We woke up and walked down the hallway where the stockings were to find them full of things. I thought it was a joke at first and the kids filled them with stuff from around home but there were real things filling those stockings. My oldest and very dear daughter Jordan thought about my comments for the last couple weeks about not doing stockings this year and developed a plan. She did a really great job of picking out just the right things. The kids were thrilled! and Dad and I were saved and blessed by such a beautiful gesture. Just when you think you have failed as a parent in so many ways God gives you glimpses into your child's character that let you know it's OK. Praise for God's goodness to us. Only through Him do we having anything good to think about. Praise Kevin has been home all weekend! Merry Christmas all. We are snowed in good here as Kevin's tractor is stuck down the driveway. Praise I guess for our time together!
Our Christmas Eve went well. We attended a candlelight service in the church I grew up in and my parents still attend. The girls played violin and sang with daughters of ladies I went to church with and sang with once upon a time. We had lasagna and opened gifts at my parents afterwards. My brother is a brat but I forgive him. I was originally hoping to buy a Wii computer game system for the kids for Christmas but opted not to buy them anything and he went and bought them one. I am not a computer person, I must say but the Wii is so interactive physically that I thought it would be a lot of fun on snowy days like today. They have been playing baseball, bowling and boxing today. It may work as a great incentive to get school done.
Four kids have birthdays in the next two weeks and then another in 5 weeks so I just decided to do birthday presents only since they would get gifts from others for Christmas. Well, we didn't even get a thing for their stockings. Yesterday morning Kevin and I had second thoughts because the kids couldn't wait until they woke up to see what was in their stockings :( We woke up and walked down the hallway where the stockings were to find them full of things. I thought it was a joke at first and the kids filled them with stuff from around home but there were real things filling those stockings. My oldest and very dear daughter Jordan thought about my comments for the last couple weeks about not doing stockings this year and developed a plan. She did a really great job of picking out just the right things. The kids were thrilled! and Dad and I were saved and blessed by such a beautiful gesture. Just when you think you have failed as a parent in so many ways God gives you glimpses into your child's character that let you know it's OK. Praise for God's goodness to us. Only through Him do we having anything good to think about. Praise Kevin has been home all weekend! Merry Christmas all. We are snowed in good here as Kevin's tractor is stuck down the driveway. Praise I guess for our time together!
Wednesday, December 23, 2009
Congress.org...
Again, I urge you dear friends please! Please go to www.Congress.org to find your Senators and compose and email to them urging them to vote no on the health care bill tomorrow morning. Besides this bill being misleading, like millions of Americans believing it will give them free health care when in reality it provides a penalty for anyone who doesn't subscribe to it, it also allows for a $12 million dollar price tag to help fund abortions through this health care bill. To you and me that means increasing our tax dollars to help make abortion more available to everyone! I have gotten letters back in response to my emails and my Senators are NOT listening to me. They believe this bill to be some sort of salvation to so many Americans that they don't care what the cost to others.
Tuesday, December 22, 2009
Taking the day off...
The last couple years home schooling we do school up until Christmas Eve Day and we only take 2 days and then we take only New Years off. Today, we took the day off. I think we will tomorrow too. I had to paint the bathrooms. The plumber comes tomorrow to put in the sinks and toilets. Yee Haw! I will be happy to have the living room and my room back to normal (there are boxes and such everywhere). Most of all, I will be happy to have a toilet nearer to me in the night! It's a long, cold walk around 5 a.m. to the end of the house.
The kids are playing computer and other games. The oldest three went with Grandpa Christmas shopping. Lena is napping. It's a nice day!
The oldest girls are preparing musical numbers for Christmas Eve service at the church I grew up in. I am working to get my house clean. I need an army or the children to leave for a couple days so that it would stay clean!
Isaac continues looking good. We see some very small changes in bm's, less blood. We keep looking for more concrete changes. Dr. K. thinks the blood will just quit all of a sudden as the ulcers disappear. I still struggle to feed him nourishing but different things. It seems it is the same meals every single day.
Merry Christmas and God Bless You all as you make your plans.
The kids are playing computer and other games. The oldest three went with Grandpa Christmas shopping. Lena is napping. It's a nice day!
The oldest girls are preparing musical numbers for Christmas Eve service at the church I grew up in. I am working to get my house clean. I need an army or the children to leave for a couple days so that it would stay clean!
Isaac continues looking good. We see some very small changes in bm's, less blood. We keep looking for more concrete changes. Dr. K. thinks the blood will just quit all of a sudden as the ulcers disappear. I still struggle to feed him nourishing but different things. It seems it is the same meals every single day.
Merry Christmas and God Bless You all as you make your plans.
Saturday, December 19, 2009
Perspective...
It all depends on how you look at it... Kevin tends to be a more optimistic person who sees one side of things and I tend to say "that's true, but, " I have been like this with Isaac's illness anyway. I have been having a hard month again watching some symptoms that make me say he's not getting better or it's getting worse. We had our doctor appointments in the Cities and Mankato yesterday. Again, perspective was an issue.
The 11 a.m. appt. with Dr. G.: She told us many times that Isaac has "Chronic Ulcerative Colitis". Kevin says this morning he almost asked her, "What does he have again?" She also told us the worst case scenario about possibly removing his colon but that she wasn't saying that would happen. She also kept looking on her computer screen telling us how bad this lab number was from his blood results and how deficient he was in something else. I asked a couple times if that was from his Monday blood tests because I had a copy of them and I didn't see those numbers. "No, she says, they are from when he was in the hospital in September." !!??!!?? I was confused why she kept looking at them. I wanted to talk about the recent ones. She did, almost reluctantly, say he looked better than the last time. She is very nice I want to say. I know she cares about what happens to Isaac. It's just perspective.
The 2:30 p.m. appt. with Dr. K was very different. He was upbeat and very pleased with how Isaac looked. He played around with the boys and talked to us about the current labs and pointed out all the improvements and that he could see Isaac moving to healing. The labs definitely showed that his body is starting to produce things on it's own and that his body is changing for the good. He described how the ulcers heal. Isaac's body has some work to do but it was nice to know that there is something going on even though we don't see it all outwardly yet. Please pray for these ulcers to heal completely. Dr. K. said we are out of the critical stage! I did quiz him on all the results because I couldn't understand why he has such a different stand about them. Perspective!
I am thankful for the day. When I was sitting in Dr. K.'s office I was wondering, "what's the point of being here. No-one can help us." God gave me a pleasant gift yesterday. I will try to keep that in front of me this week and the next.
The 11 a.m. appt. with Dr. G.: She told us many times that Isaac has "Chronic Ulcerative Colitis". Kevin says this morning he almost asked her, "What does he have again?" She also told us the worst case scenario about possibly removing his colon but that she wasn't saying that would happen. She also kept looking on her computer screen telling us how bad this lab number was from his blood results and how deficient he was in something else. I asked a couple times if that was from his Monday blood tests because I had a copy of them and I didn't see those numbers. "No, she says, they are from when he was in the hospital in September." !!??!!?? I was confused why she kept looking at them. I wanted to talk about the recent ones. She did, almost reluctantly, say he looked better than the last time. She is very nice I want to say. I know she cares about what happens to Isaac. It's just perspective.
The 2:30 p.m. appt. with Dr. K was very different. He was upbeat and very pleased with how Isaac looked. He played around with the boys and talked to us about the current labs and pointed out all the improvements and that he could see Isaac moving to healing. The labs definitely showed that his body is starting to produce things on it's own and that his body is changing for the good. He described how the ulcers heal. Isaac's body has some work to do but it was nice to know that there is something going on even though we don't see it all outwardly yet. Please pray for these ulcers to heal completely. Dr. K. said we are out of the critical stage! I did quiz him on all the results because I couldn't understand why he has such a different stand about them. Perspective!
I am thankful for the day. When I was sitting in Dr. K.'s office I was wondering, "what's the point of being here. No-one can help us." God gave me a pleasant gift yesterday. I will try to keep that in front of me this week and the next.
Tuesday, December 15, 2009
Goodbye...
My Grandma Edie passed away this morning about 2 a.m. We went to visit her on Sunday and she was responsive but not looking very well. She was only drinking a little water by then. Of course, two kids had to stay home due to one not feeling well so they are both a little down that they didn't get to see her one more time. I remember that happened when my Grandpa Hilton had a stroke. He died before we got to see him so I do feel terrible for Rebekah and Emily. I pray it won't stay with them too long as disappointment.
Isaac is not really feeling good today. It seems every time I post to pray for less blood or healing on this computer he gets a little worse so forgive me if this sounds weird but I pray the shed blood of Jesus on this message, I pray that Satan could not use these words meant to share with others how to pray for Isaac in a negative way, I pray Satan could not get a foot-hold into our life through this internet. I pray in Jesus name for Christ's glory to be revealed in Isaac's healing. We claim healing on Isaac and 1 John 4:4 Ye are of God, little children, and have overcome them: because greater is He that is in you, than he that is in the world. Christ is on the throne of our hearts and on our home! AMEN!
Isaac is not really feeling good today. It seems every time I post to pray for less blood or healing on this computer he gets a little worse so forgive me if this sounds weird but I pray the shed blood of Jesus on this message, I pray that Satan could not use these words meant to share with others how to pray for Isaac in a negative way, I pray Satan could not get a foot-hold into our life through this internet. I pray in Jesus name for Christ's glory to be revealed in Isaac's healing. We claim healing on Isaac and 1 John 4:4 Ye are of God, little children, and have overcome them: because greater is He that is in you, than he that is in the world. Christ is on the throne of our hearts and on our home! AMEN!
Subscribe to:
Posts (Atom)